Daily Archives: May 12, 2016

Choking

Thank you Lydia and Linda for your help tonight. And thank you David for attending Alissas award banquet for me. Katie had a long day. It was just a long, long day. She choked on her first bit of food tonight. It was silent and had I not been looking at her, we wouldn’t have even noticed. It scared her to death. I’ve learned from countless parents and Dr’s that this is a very scary, and bad sign for a #DIPG patient. We are concerned. Tonight she slept early. She needed it. And so do we… So off we go. Here’s are some pics and a very, very scary statistic that we should all share for #GoGrayInMay. We are hoping for better luck tomorrow! Thank you so very much everyone. Goodnight… #KatherineTheBrave

Legacy

Katie’s cancer will not be hidden. Her life will be remembered for what it was, beautiful, and for what it is now, a nightmare while awake. I’m devastated, and haven’t stopped crying all day. I want everyone to feel this, really feel this, so that those of you who share and support us continue to connect with the hearts and minds of those around you who haven’t heard, and who are still not aware. #TruthBringsAwareness #KatherineTheBrave #DIPG #MoreThanFour

This Os t Hollywoods Scare Flick

*Graphic* #PleaseShareKatherinesStory #KatherineDeservedMoreThanFour #ThisIsDIPG #ThisIsBrainCancer #DIPG
She was like this all night. Raspy. Congested. Struggling to breathe. We haven’t slept at all. If she doesn’t sleep, we don’t sleep. Everyone pays the price for this cancer. However, these kids pay more than anyone. Nothing we feel could ever even contribute an equal amount of pain and suffering to what my precious child is going through right now. She deserves to live. Right? So why is this freaking happening? Last night, or this morning, (I can’t remember because I didn’t sleep at all), I had visions of Katie running through the house, calling for me, asking for a snack and what we were going to do that day. Eyes wide, I gasped and pushed it down. Not now. Not where she can see me. Those happy days are GONE. And they are gone because of #DIPG. Imagine a child running and playing, and hugging with all her might, giggling over her dads silly jokes, suddenly pulled backwards in time and her life source ripped from her. She is lying there, lifeless, and helpless. Drooling, mumbling, searching with her eyes for answers. This isn’t the stuff of movies. This isn’t a dream, or hollywoods latest scare flick. This is Katie’s life. Right here. Right now. #MoreThanFour #4PercentIsNotEnough