Monthly Archives: September 2016

Forever 7

Tomorrow is Katherine’s Celebration of Life. It’s a day when those that loved and followed Katherine’s journey will go to a party filled with the stuff of Katherine’s dreams. To celebrate her. Remember her. Talk about her. Her presence will be felt, I’m sure. 
Tomorrow we will say goodbye to our daughter. Our precious 7 year old child. She was flesh, and blood. She was a human being who deserved a life of happiness and struggles to manage in her own way. To grow into a personality of her own. Instead she was diagnosed with cancer and sent home on hospice to die. Any battle fought for her would be our battle. Alone. And we fought. 
David and I sat here tonight and cried. We stared at each other, broke down the last 12 years of our lives and tried to place all of the pieces into their slots. Nothing fits. If she was here we could see that perfect puzzle put together. Without her, nothing fits. After trying to grasp it all, again, David said something that I feel often but do not verbalize, “Was it all a dream…” we stopped and stared at each other again and cried harder. I spoke to Libby Kranz two weeks ago at Stanford and she said she felt the same way. “Was it real… Did this happen in reality to my child.” As hard as it sounds to believe, you literally, in that moment, have to reach for a token, a blanket, a toy, something of hers to remind yourself that she was real. To smell her again. Our brains can’t process this. Our minds body is not able to hold a child in them for 9 months, nurture them, love them, care for them, and watch them die slowly. We automatically assume it was not real. We want to believe it was just a dream. 
Well she was real… And she was robbed, and so were we. She deserved to be here and not to wither away with no hope or chance to live and love. She suffered a fate which she did not deserve. She deserved to have a fighting chance. She is forever 7. 
Tomorrow We will be Katherine’s parents. Momma and Daddy the Brave. We will be weak and broken on the inside. Strong and Brave on the outside. Just like Katherine. I knew many times she was falling apart, but she stayed strong and fought for us. And So we will fight for her. 
We are so sorry Katie Baby. We love you so much. 
#LovesAndKisses

#KatherineTheBrave

#DIPG

#RainbowSocks

Forever 7

#PleaseShareKatherinesStory
Day 26th of Pediatric Cancer Awareness Month #GoGold
This Saturday, October 1st, we will be celebrating Katherine’s life, her footprint on this planet, and the lives she’s touched. This celebration will be a representation of what Katherine would have wanted. A tropical, unicorn, rainbow, sock paradise! Thank you to Margarita Solazzo, Cindy, Kanani, Jenni, Desiree, David and everyone else involved in all of this. I can’t thank you enough… and I know you will make her proud. She loved celebrations, as we all know.
We are asking for some help with a few small things, and hope that everyone will take a quick moment to read this.
1: If you are going to make it to her celebration, please fill out this super simple Google doc: https://docs.google.com/forms/d/e/1FAIpQLScYtG8aHZR914_Tc0XUFaMXQz6AL0mfY4Ujv9Stimelc6XQ-Q/viewform?usp=fb_send_fb

2: If you can’t make it, but want to help make it special for Katherine’s friends and family, please go here to donate: http://gofundme.com/KTBCOL

3: If you would like to join our Katherine The Brave DIPG Research movement go here: https://my.supportlpch.org/KatherinetheBrave. We will be starting a Forever 7 campaign to benefit DIPG research on October 1st, the same day as Katherine’s Celebration of life. If you can’t make it to donate $7 in person, you can do it right here online.
If every Katherine supporter shared her campaign with 7 friends and family, and each person donated $7, we could raise well over 1.5 million dollars. By donating $7, and asking 7 friends and family to donate $7, you are helping us find a cure, and give hope to children who are given a diagnosis that rips that hope from you. $7… A cup of coffee, or two… That’s it… $1.5 million. It’s seriously that simple, and we will be that much closer to a cure for Katherine’s cancer, and in Katherine’s name. It would be one of the biggest impacts on DIPG research in history, since HONY’s Facebook broadcast.
You can donate in these other ways as well:

Venmo: @Jaime-King-1 or 7148144090 or jaimerieck@yahoo.com

PayPal: www.paypal.me/katherinethebrave

Mail: Jaime King 4350 Von Karman Ave Ste 225, Newport Beach, CA 92660
Remember, each day 7 children die of pediatric cancer, and Katherine only lived with us for 7 short years. Something this simple can NOT fail for our kids!!!
Thank you from the bottoms of our heart, Jaime King #MommaTheBrave
#KatherineTheBrave

#DIPG

Day 23 Packing Up

#PleaseShareKatherinesStory#ThisIsDIPG

#DIPGParentsMakeTheseKindsOfDecisions
Day 23 of Pediatric Cancer Awareness Month
Last night I finally went through some of Katherine’s stuff. I just couldn’t take it anymore. Staring at that heap. So crudely tossed together in a crying fit of rage. 7 years of a beautiful human beings life, now nothing but possessions, memories, bags, no organization, and chaos. Similar to my mind. She was so much more than that pile of stuff. She would definitely NOT approve of the mess. Perpetually her mother’s daughter… I drove home, pumping myself up. Talking to myself in my head. I can do this. I can get started. If it’s too hard, I’ll just stop. I just had to at least start it on my own, so that if it’s too bad for me emotionally, than I wouldn’t be there falling apart, surrounded by others, making them uncomfortable. I felt ok, I knew it needed to be done, and I wasn’t getting rid of anything, just boxing it up, so that helped me convince myself that I could do this. I sat in the car for a while, taking my time to walk up to the door, and walked in to my home.
When I started, I asked Alissa for help. She did, begrudgingly. Not because she didn’t want to help. Because she too felt depressed about it. David came home, looked at me, stone faced. He knew… I was doing this, and there was no changing my mind. He went to get changed, and joined us. We worked as a team, quick, and almost in a hurried manner. Rushing to pack boxes, as fast as possible. So fast as not to touch anything too long, dwell on, or think too deeply into anything that would conjure up an emotion we could not control. We packed her precious items. Her artwork, books, horses, gloves, dolls, tiaras, socks… so many beautiful colored socks. Toys, toys and more toys. Toys she put aside to play with “when she felt better”. Toys she saved for her cousins. Half completed projects, from the “to be finished when she felt better” pile. Half drawn artwork, to be given to people she loved at some point. Trinkets she picked up along the way to share with her kids later in life, rocks, sand, feathers… Boots. Soft pink boots, which she wore every day. I put that in the box, and didn’t look. I just felt my way around the box, and stuffed them in, head turned. So many things. So much of her. Now boxed up, and bagged up. Waiting for me to have the guts to make decisions. Horrible, awful, decisions…
I wiped my face, my neck, my chest, the floor when I was done, it was soaking with tears… I wiped up my soul from that floor as well. My heart… my sanity. Wrapped up the towel, and I put that in a box too. For later…
#KatherineTheBrave

#DIPG

#MoreThanFour

#GoGoldForKatherine

#LovesAndKisses

Thankful 

It’s been a while since we have been able to say thank you for the things that people have sent us, and Katherine. I’m sure there will be plenty that we have missed. Katherine’s stuff is piled up and waiting. I’m moving slowly. Every item, and inch forward, feels like a million miles of pain and hurt. I promise that we are grateful for everything, and will try hard to get to it all very soon. In the mean time I know that time is of the essence with Katherine’s Celebration of Life and #DIPG research fundraiser coming up. So… here are some thank you’d.
Thank you to the Better Britches Team, and Whitney Denman, for Davids LuLaRoe shirt!
Thank you Theodora Cornelia, Sherry Resquer, Damaris Brusby, Kimberly Rucshner, and Laura Moreno for the abundant amount of socks for Katie’s celebration of life. 
Thank you Laura Jean for the leis and for doing so much for this family recently as well.
I remember Katherine only letting me put her socks on. It was Mommas thing. I miss you sweetie. Goodnight everyone. 
#KatherineTheBrave

#DIPG

#LovesAndKisses

#RainbowSocks

September 8th

Day 8, September 8th, Pediatric Cancer Awareness month.
She is frozen in time.
Everything around me moves, and I wonder… How? That look on her face, in this pic, “I’m having so much fun mom! Cheeeeeeesssse!” I was frustrated on this day. Another invite, to another party, on another weekend day, which I felt was wasted in this situation. My sweet Katherine didn’t want to eat, she just wanted to play. Taking time out to eat was wasting time. She wanted to be in the moment, to soak it all in, and enjoy herself. Why do adults forget this uncomplicated fact of life. To be in the moment, and enjoy ourselves, and our kin.
I wonder if it’s because we are lied to. We are led to believe that we have endless time, and that people are out there every day trying to save us, from ourselves. To give us more time… The efforts are fruitless, and the money is evenly distributed, and kids are our number one priority. So, if I told you that the average loss of life for a child who succumbs to brain cancer is 71 years, and then if I told you that the average loss of life for a person who succumbs to breast cancer is 16 years, would you feel safe? Would you stop, and think about the food you’re feeding your children, or the choices you made at their last exam? Would you trust the system to care for them? Then if I said that the #AmericanCancerSociety gives .01% of every dollar that you donate to our children, and that the #NationalCancerInstitute gives less than .04% of every dollar, would you still feel safe, and secure in our current system? Would you be concerned that the poisons that they use to “save” our children cause these children’s as adults to succumb to more cancers, and diseases as their bodies are weakened, and suffer further. Would they get more money than from the ACS, and NCI as adults? I’m going to assume that as 95% of them get closer to the ripe old age of 45, which is the average age at which our children will succumb to other diseases caused by chemo, that as long as it’s not a rare disease, and also not a non-profitable disease, they will be fine and well taken care of, if they make it…
No, I don’t feel secure anymore. I remember that moment, in that hallway, when we were told Katherine would die, and why… We learned that we are the advocates, and the families are the warriors, and that no one else is going to do it, but us. We didn’t feel safe anymore, and neither should anyone, anywhere.
Everything is moving around us. Fast. But there she is, smiling at me… Hoping that I will be in the moment with her. I’m still trying Katherine. I promise.
#PleaseShareKatherinesStory

#MakeOthersAware

#Awareness

#ItComesAndGoesInWaves

#KatherineTheBrave

#DIPG

#LoveAndKisses

#GoGold

Future

Day 6, September 6th, of pediatric Cancer awareness month. What did cancer take from me? It took my beautiful, brilliant, loving daughter. Our families center. It took away a future doctor, nurse, teacher, scientist, cancer cure contributor. It stole a daughter, sister, cousin, niece, friend, and future mother and grandmother. It ripped the core of our existence. The ripple affect of life’s daily proceedings is forever changed for everyone who knows and would have met her. 
What did cancer take from you? What did it take from us as a society. Please share this post and write what cancer stole from you. On the comment, on your shared post, or both. Show me, and others, that we are not alone. Tell people why this matters. Why you will never be the same, and how this should matter to us too. Warning: this is going to stir up emotions. From your childhood, teenage years, or adult life. Maybe emotions that you weren’t really prepared to deal with today. But the reality is that we grow apathetic to things such as cancer, pain, and death. And very rarely do we reach back and remember how wrong, and unnecessary things like cancer are. How much they took from us. The pain of having our loved ones taken from us so soon.
Our government, the NCI and ACS, count on us to go back to normal, and move on. To donate in memory, but not question their process and their billions in funds which do not get distributed evenly, because the ones who shout the loudest are the ones who get that money. I’m not ok with this. I miss my child. We should all be worried and remember, remember deeply.
I have a feeling the comments and shares are going to shock me, and I’m ready.
#PLEASESHAREKATHERINESSTORY

#katherinethebrave

#DIPG

#MoreThanFour

#lovesandkisses

#gogold​

Chinese Ballerina Camp

Because people are asking me, and it really needs to be heard, here is the original video of Katherine without the music. It was the day before our annual family vacation to Hawaii, April 9th, 2014. She was amazing and now you will know how free her spirit was and, for some of you, remember her love for life. 
#KatherineTheBrave

#DIPG

#KatherineDeservedMoreThanFour

#MoreThanFour

#LovesAndKisses​