Taking a Knee

We took a knee… when we found out our daughter would die. We took a knee when we were hugging her because she couldn’t get up to hug us anymore, or it hurt to lift her arms. We went down on our knees when we had to clean up the mess from spilled food and drinks when she couldn’t hold things anymore. We took a knee still holding her up on the potty to help her keep her dignity at 7 years old with a terminal cancer. We took a knee when we were filling her tubie with more oils to stop the pain from her organs slowly failing, one by one. We took a knee when she died, to hug her and to say goodbye.
Taking a knee is the least of our problems.
If as many people were to see childhood cancer as passionately unacceptable, and as socially irresponsible, as they see protesting during a football game, Katherine would have made it. She definitely would have made it. She’d be here today. Smiling. Asking us what’s all the fuss about.
I’m not telling you what my opinion is. Because it doesn’t matter. None of it matters when you’re in our reality. I laughed a lot today at the riduculousness of it all. I hope you never experience this numbness we live with everyday. What we experienced as a family makes you bitter and angry towards the backlash of these “little things”. No, the real stuff isn’t in the headlines sadly. That real stuff is what truly brings you to your knees. 😔🎗
#KatherineTheBrave #EndDIPG #MoreThan4

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