Category Archives: Events/Fundraisers


It’s been a while since we have been able to say thank you for the things that people have sent us, and Katherine. I’m sure there will be plenty that we have missed. Katherine’s stuff is piled up and waiting. I’m moving slowly. Every item, and inch forward, feels like a million miles of pain and hurt. I promise that we are grateful for everything, and will try hard to get to it all very soon. In the mean time I know that time is of the essence with Katherine’s Celebration of Life and #DIPG research fundraiser coming up. So… here are some thank you’d.
Thank you to the Better Britches Team, and Whitney Denman, for Davids LuLaRoe shirt!
Thank you Theodora Cornelia, Sherry Resquer, Damaris Brusby, Kimberly Rucshner, and Laura Moreno for the abundant amount of socks for Katie’s celebration of life. 
Thank you Laura Jean for the leis and for doing so much for this family recently as well.
I remember Katherine only letting me put her socks on. It was Mommas thing. I miss you sweetie. Goodnight everyone. 




September 2nd

September 2nd, day two of Pediatric Cancer Awareness month, #GoGold, and oh the thoughts going through my head. My precious 7 year old child is gone. On June 6th of this year she died in my arms, after I asked her to let go, as I changed my mind and begged for her to stay with me, and then begged her to be pain free and go again…
So I’m left here to ask: Why didn’t I know about pediatric cancers and their lack of funding before my Katherine was diagnosed with cancer? Why didn’t we know that some cancers, as Katherine’s, have no survival rate, and that children are just expected to go home and die? Why didn’t we know that cancer kills more than 2,500 children in our country every year. We weren’t aware that over 13,500 kids will be diagnosed with cancer over the next 365 days, right along with us? Who knew that no government funding means that these children sit and wait to take poisons that don’t work, and receive treatments which are more than 35 years old, and with little survival success rates. These children WILL die. I could have never guessed that the NCI controls BILLIONS of dollars in funding but will NOT give it to us!!! I was oblivious. 
Well now I know. And so do you. Are we mad yet???
This was my daughter. Several days after she passed away in my arms. Surrounded by friends and family. She is laying on a cold metal table, in a mortuary. She has her favorite princess blanket draped over her body. This is pediatric cancer. This is #DIPG. This isn’t an adult. She didn’t live a full life. She didn’t even live a partial life. She lived 7 years. She was given no chance. She deserved more. We were told she WOULD die. And that she did. She died. She gasped for her last breathe, in no different fashion than an elderly patient passing of natural causes and old age. At 7 years old. And we died too. 
Please share our daughters story. Please share so that others are aware. So that at some point in our lives other kids hopefully do not have to suffer the same fate. So that the NCI and the ACS have to pay attention. So that our government realizes that their focus, and their priorities, are mute compared to the children dying every day right in front of our eyes, in this country. Dying, in our arms. In my arms…
I’m so sorry Katherine. I miss you. I’ll fight until I die for people to stop this insanity and do something about this. #LovesAndkisses


Ask me?

#PleaseShareOurDIPGStory #PleaseShareKatherinesStory #PleaseAskYourFriendsToShare
Ask me about the fact that some cancers are still incurable? Ask me about watching my child succumb, in my arms, to a cancer with almost zero government funding, or concern? Ask me what its like to wake up each day knowing that something more could have been done? Ask me why people still are not aware of this cancer? Ask me what it’s like to hear that this cancer is referred to as rare, when children are being diagnosed all around us. Ask me why I fight? Ask me why you should care?
Ask me about #DIPG?
#KatherineTheBrave #LovesAndKisses #MoreThanFour #MichaelMosierFoundation #DefeatDIPG

Celebration Of Life

#PleaseShareKatherinesStory #KatherineTheBravesCelebrationOfLife #July16th
Some things that #KatherineTheBrave loved…
1: rainbows

2: face painting

3: bounce houses

4: horses

5: Hawaii

6: Hawaiian music

7: waterfalls

8: beer (for mom and dad to be happy 🙂 )

9: food

10: water slides

11: balloons

12: crazy socks

13: sherbet

14: movie night

15: Legos

16: princess rose tea parties

17: her favorite cousins and friends
And more…
We are trying to create a special event to honor our beautiful Katherine and the fight she led for 12 longs months. My sisters Cindy, Kanani and Samantha have started a PayPal account to help pay for the items that are not donated. We are open to any and all suggestions, donations and support. We need volunteers… We are going to use this event to spread awareness about #DIPG and what Katherine fought with for so long. All the while celebrating her life and just how special she truly was.
The remaining donations will help us get Katherine and our family to Hawaii to spread her ashes on her favorite island of Kauai.
Can you pleaseshare the link below for us, and #PleaseShareKatherinesStory.
Thank you, #MommaTheBrave and #DaddyTheBrave


I want to personally thank everyone for taking care of the trollers on Katherine’s page. You are all so supportive, and understanding. Even when the #truth of our posts, are tough to swallow, you know we’ve lived it, and you are supportive of our decision to share our life and spread the word about this awful disease. #KatherineTheBrave received a 0% survival rate. She was given 0% funding for her cancer, #DIPG, from the government. We had to reach far into the depths of our lost souls, and beg for any hope in this nightmare. We fought tooth and nail, and were not awarded for our efforts. She suffered… so much. Our baby suffered. We promised Katherine to fight for her. We promised her that we would use her story to keep other kids from suffering her fate. We promised her transparency. She wanted us to share her story. She smiled for every picture. In fact, if she didn’t smile, she made me delete the picture, and take it again. She’s not smiling anymore. At least here on earth. But that doesn’t make this any less tragic. So, if they don’t want to witness the truth about pediatric cancer, than I am sorry, but I will not stop showing the hell we experienced, that she experienced. I know it’s hard for families going through this as well, to witness the possible future, but it’s real, its raw, it’s what they are experiencing too, and this is why they can’t look at it. It’s hard, I know…. However, my posts are no more graphic than what we saw every day at the hospital, and with our new cancer families children, who have died as well. We were surrounded by it. Why is Facebook any different? It’s not, and its the best place to make her name known, and to spread the truth, and to help find a cure. As I’ve said before, confidentiality and secrecy is what killed my daughter, transparency will help cure this awful disease, DIPG. As people see it here, and as they get angry about this truth, it will scream volumes over a few stragglers in a hospital, experiencing it first hand. In Katherines name, I will not stop showing the truth, until we have a cure. I apologize for anyone we’ve offended, but feel free to remove yourself, or… we will. You could also choose to become witness to this tragedy as it played out to us, think differently, and help us fight.
Thank you… #MommaTheBrave and #DaddyTheBrave

Katherine Was Endless




Today we said our final goodbyes to Katie Baby. We watched her go in, and we cried. Together.

It’s been unseasonably cold for the past few days, and starting tomorrow the heat wave comes. Strangely. 

A balloon followed me around this morning, and right before we were to leave it floated from one end of the house, all the way through the house, into the parlor, and to the right of the living room. It hit me and continued to remain there until I grabbed it and tied it to Katie’s items going with her. I brought it to Katie today. It also went with her.
Katherine’s Eulogy from Mommy and Daddy
–A young life cut short–
Do not judge a song by its duration

Nor by the number of its notes

Judge it by the richness of its contents

Sometimes those unfinished are among the most poignant…

Do not judge a song by its duration

Nor by the number of its notes

Judge it by the way it touches and lifts the soul

Sometimes those unfinished are among the most beautiful…

And when something has enriched your life

And when it’s melody lingers on in your heart.

Is it unfinished?

Or is it endless?
Katherine was a daughter, a sister, a niece, a granddaughter. But beyond the labels, which she took to so naturally, and handed down to her by birth order, she was also a naturally patient leader. A loving care giver, even in her time of suffering. A consoler to those children also suffering her fate. A kind ear to those struggling to come to grips with her diagnosis. And an amazing cousin and friend to children and adults, alike. You were special, and everyone knew it. Katherine was unfinished. 
Katherine, we promise to continue the fight against this cancer for you. We can do this because you’ve given everyone a precious gift in more ways than you know. You’ve left us with some amazing tools. You’ve shown us that even in the worst of suffering, we all still have a little more to give, to ease the suffering of others and to fight one more battle. You’ve shown us that even as we lose ourselves, and our ability to function as humans, or our natural instincts are being ripped away from us, you, or we, can still smile and laugh. You’ve shown us how strong the bond between family, friends, and even strangers, can be when it comes to supporting and loving a child who is suffering with an incurable disease. You’ve taught us that hope and love can move mountains, pay bills, pay thousands of dollars in oils for a better quality of life, surpass a life expectancy, and keep a family functioning. You’ve also given a piece of your flesh and blood to science for further research. It will not help you, but it will stop others from going through the nightmare that you’ve experienced, and I know this would have been your choice. You were a giver, with no regard to yourself, often. Katherine was endless.
Katherine, we will miss your laugh, your giggles, your witty brain, your half hugs and kisses, your love for Hawaii, weird socks, Legos, rainbows, unicorns, sherbet and movie nights. We will search our entire lives for anything comparable to you, but we are highly unlikely to find it, because you were unique, and we could see that in your eyes, through your old soul, from day one.
Katherine you will not be judged by your short life, or insurmountable suffering. You are not finished. You are endless.
We love you Katie Baby. You are Katherine The Brave, now Katherine The legend. 
Loves and Kisses, Daddy, Mommy, Tori and Alissa

Angels for an Angel

Many of #KatherineTheBrave family and friends will be at the Angel stadium today to celebrate an Angel game, Katherines life, and spread the word about #DIPG. Janet Demeter of Jacks Angels is also running all the way from LAfor Katherine and DIPG and will be at the stadium today as well. The Max Love Project has offered us access to the batting cages, which was one of Katherine’s favorite events. They are also honoring Katherine this year for their annual fundraiser to Strike Out Childhood Cancer. Please join us, even if you don’t want to see the games, say hi. We’d love to talk about our sweet Katherine. We will be under there Big A until 4:30 PM and than in the stadium, in section 260, after 6 PM. See you there! Katie baby, we miss you. 

Behind The Badge OC

Behind TheBadge OC continues to feature #KatherineTheBraves story, even when other media outlets will not. Thank you to Lou Ponsi and Steven Georges for coming out again and telling Katherine’s story for us, on the request of Erin and Kelly, and to fight #DIPG. I hope this is shared a million times!!!

Building HOPE

#KatherineTheBrave was honored tonight at an event organized by #BuildingHope and the boards President (and friend) Ada Chan and the Los Angeles Real Estate Council for the City of Hope Hospital. This event is ran each year to raise funds for a specific medical research need. This years focus for funding was on Brain Cancers and specifically pediatric brain cancer research. Katherine, the inspiration for this event, was recognized for her fight against Diffuse Intrinsic Pontine Glioma. Many of my old and current colleagues joined us in support of her battle and the research needed to cure this cancer. Tonight was an attempt to raise money for research into a possible immunotherapy cure for this type of glioma, and many more types of brain cancer. When we left, the total funds raised for this new immunotherapy research, and the scientists performing the tasks, was gross over $80,000. You heard that right… ***$80,000*** For those of you that know, #DIPG just does not get this kind of funding. It’s unheard of. And this is why I am honored to be supporting this type of research for our daughter, and for all of the children diagnosed with brain cancer. Thank you to all my past and present colleagues for joining us tonight in our fight against cancers, many of which, in this day and age, are still considered terminal upon diagnosis, for children and adults. And thank you for taking a night out of your busy lives to step into ours and help us spread awareness, shed some tears, and eat sherbet! Katherine’s favorite! I see a cure in our future, or at the very least, a better chance for our kids to fight… #NeverGiveUpHope #COH #CityOfHope