Category Archives: Uncategorized

Old Age

Old age is not lost on me. I’m noticing small things. My body is not at all happy with me. I’m tying to make peace with it. I’m trying to age gracefully as we all do, but I feel as if the process sped up in my case. A rapid aging of my mind and soul. My body is catching up to my mind I suppose. They are not in sync at all.

As if old age wasn’t bad enough, I’m so devastated that I have to experience a majority of the rest of my long, slow, new awareness without one of my children to lean on and celebrate our milestones together. It makes each change in my life, each new realization of the natural process of aging so awkward and strange. I relish Tori and Alissas experiences and I share mine, but we all feel something is missing. There was another little person that walked alongside us and she just disappeared.

These natural occurrences are already so hard to stomach, but when we have those young beautiful people to make us feel like we accomplished something it makes it so much easier. Well… one of my beautiful young reminders of why I exist is gone. She wont get to grow old. Or age. Or enjoy any milestones but the ripe old age of 6. I feel guilty and sad that she lost that chance. And completely heartbroken that she won’t see mine.

I will think of her when I pass. So fondly and softly she will be in my heart. I pray that if everyone is right, then I will get to finally see her, or at least finally be at peace with this loss. That’s the only hope I have left.

One of those, stop, it hits you, you can’t breath for a moment, feel a tightness in your chest, and tear up constantly, kind of days… deep breaths. In and out.

#katherinethebrave #dipg #lovesandkisses #seeyounexttime

Mother’s Day

Mothers day isn’t so hard. Because every day is hard with this loss.

Whether you’ve lost a mother figure, or have lost a precious pregnancy, baby or child you’ve raised, blood or not, every day that you wake up without that brilliant being in your life is hard. This day does not change that heartache.

This day just pushes that loss to the forefront a little more abruptly. Reminds you to appreciate what you have left. Encourages those who may not normally reach out to try. And makes you suffer a little bit more then you already have each day by watching those that have whole families not appreciate what they have. Thank you so much to those that do. It’s helpful.

I don’t want gifts. I want my family next to me. All of them. The missing one too. I’ve always been that way though. It hasn’t really changed. But even with my non-codependency to gifts and attention on Mother’s Day, once you spend one Mother’s Day carrying your dying child around who can’t walk, and watching her wilt away slowly into the night, and knowing any day that this brilliant being could die, they’re never the same. That was a real bad Mother’s Day. This is nothing. It’s like white noise. Deafening. All of it.

At least she has the comfort of her peace on this Mother’s Day. She will suffer no more. We do. But at least she won’t. She suffered enough for all of us. Holidays didn’t give her reprieve. She has one finally. That’s my Mother’s Day present. It’s all I will ever need. Ever. Thank you.

Mothers Day, May 8th 2016

Mother’s Day 2016

Mother’s Day 2016-2

Shares

39,500 shares and 1,600,000 million views of a long boring video about a young healthy famous persons pregnancy.

38 (hard stop) shares and a 118 (hard stop) likes about a dead child’s tumors needing funding to save thousands of more dead children, some of which could soon be their dead children.

I’m not shaming anyone. I’m proving a point. Share away. Share all of the things that make us smile. But also share the #TRUTH. That video, and their life, is not the truth. That’s why we like it… in doses. My truth was real. I couldn’t skip past my truth on my feed. Or not share. Or pretend it wasn’t happening. Ignoring it or unfollowing it. I cried enough tears to mop a damn floor. And then I had to clean up my own damn mess. That’s the truth.

We all suffer when we pretend it’s not happening. I know you may think its easier to look away, but in the end it isn’t easier. It’s harder. For everyone. Harder for the many families such as ours tying to make a difference for all of our kids. Much harder than sharing Katherine’s story to raise awareness and open peoples eyes. Definitely not as hard as it is for me to share it day in and day out. I was there. This is nothing. And definitely not as hard as it was for her. She lived it. Until her last breath.

Our friends list, as precious and fragile as it is to us, means nothing compared to her suffering. Or the suffering of those soon to be diagnosed. Close to you. Nothing even close. Now share that…

#lit #ashamed #neverforgetkatherinethebrave #thetruthhurtsbutlieshurtourchildren #gograyinmay #katherinethebrave #katherinedeservedmorethan4 #katherinedeservedacure #Katherinewasworthmoreshares

Old accounts

Walked past an elementary school today. I thought, to myself… I should be at a table doing homework with my 9 year old right now. Planning for an exciting summer. Worrying about how I was going to possibly manage it all. I just sighed and sucked it in. Finished my walk and deflected the tight gulp in my chest and throat as I held back the emotions.

I made it home and tried to wipe the disgust and shame of my life off with distraction. Started going through documents, a never ending task for us all. Then I began I update some details on my medical accounts and profiles. Until I came across this…

No. She is not 9 Walgreens. She stopped breathing at 7… we will not be filling anymore prescriptions for her. She filled enough in 12 months to last a lifetime anyway. And none of it helped. None of it.

Thanks. Thanks a lot.

You’ve spent enough time grieving…

“It’s important that you be there for your other daughters…” translates to, “You’ve spent enough time grieving…”

I don’t need a reminder that I have two other children. I held them for 9 months, and raised them right alongside the daughter that didn’t make it. In fact, they raised her with me. They were like her 2nd and 3rd mommies. I wonder how long their allowed to grieve their sisters death? These half moms of Katherine. Maybe they’ll get half the time. Or maybe even the same as me. Who has that bereavement book with the timeline. Or better yet, just be sure to share all of the opinions that you have and I’ll just go off of that… seriously.

May is here. I’ve spent the past two days either crying or being extremely angry and broken. It’s worse than year one. The shock is wearing off and she is still gone. Everyday a new realization that she is definitely not coming back. It hits me like a 1000 little half breaths, none completely filling my lungs. My baby is gone. I know, but you must try. But she took me with her. I can see that, but you are strong. I just don’t “feel” it anymore. Who could blame you, but you’ve gone this far. I’m tired of trying to find those old feelings again. It’s gone. I’m sorry, but you have no choice if you want to move forward. Heal…

If I could have said just one more goodbye. Just one.

#MadAsHell #CrocodileAngryTears #ImHandlingThisGracefully #IGracefullyDidntCatchThatLampIThrew #ButIGracefullyCleanedItUp #NoOneGotHurt #ExceptTheLamp #MyBad #IveAlwaysHatedThatLamp

https://youtu.be/l_EmZ-LsLqs

A Thousand

She lived a thousand years before I even lived 40…

This picture has sat in my phone for weeks. I struggled to post it. I hurts from the depths of my unforgiving soul every time I see it. Nothing can prepare a family to handle watching this type of suffering from their child. Nothing can save my beaten and broken heart because of her pain. I didn’t realize then that the me I was would go with her. Gone for good.

Nothing, forever, a thousand times, will ever makeup for this exhausting and incomplete leftover life we are trying to live. Faking happiness with every turn of events. It’s like the moment she died someone dropped me a million miles away and I’m constantly trying to walk back to my old life. In search of that happiness I didn’t appreciate or cherish. Trying new things with old traditions. Hoping it will remind me of a time when… It never works… I remember by morning.

Maybe that’s it. It will never get better, and I’ll be mapping my way back for life. The thought fills me with dread. The selfish thoughts. Self loathing has become comforting. I don’t want to be here or like that. I want to have some peace again. Even if it’s just for a moment. To breath. With my healthy girls. Free again.

Stop Grieving

I’m not strong. I need to wake up. I should stop grieving. I have to realize I’m not the only one suffering the loss of a child. I must move on.

Sarcasm…

Here’s a taste of what us cancer families get from followers every damn day. This person was just bold enough to put it in a public post and didn’t hide behind a FB message and then quickly lock their FB. page down, or pretend it came from some sort of religious belief, or even use an experience to make it sound plausible. Sad… It’s sad for all of us.

Hey people, I post to get my frustrations out, and to help other families feel as if they are not alone. To spread awareness for my daughters rare cancer and help with all of the above. Sometimes these crappy comments are easy to ignore because the post wasn’t emotional for me specifically. Not this time… If this keeps up, as it has been more frequent the further from her death we get, then I’m out.

Wonder

I wonder if she just wanted to swim away and forget it all? I know I did. And do…

I had a rough night(day/month/year/life…) last night. Nightmares. Night terrors. I feel things that aren’t real. Physically, visually, and emotionally ina blur. And they scare me… Nothing feels good about it. 2.5 years of this. Nothing positive or happy in my dreams.

I had a sudden realization today. Like every day. She’s gone. Forever. I stopped and gasped. I almost grabbed a wall. I will know nothing more of her than what I know now. I will learn nothing more of her than I have already learned.

She’s gone. Just gone and for nothing. The trauma is unforgivable and tragic. And there always… Hiding. Waiting to escape at every turn of the page or change in the wind.

Every day, a reminder of my loss and hers.

😔💔