Daily Archives: October 14, 2015

Cautiously Stable

***PLEASE SHARE*** Katherine’s tumor is stable. No significant growth. So for now we are still in our honeymoon period. She had .1 centimeter growth in one area and .2 in another, although this is not relevant growth; and, as the Dr. put it, may give us some leverage with the insurance company on the Panobinostat, so we will keep our hope up due to this. Thank goodness. We are done. But are we… What a roller coaster. We didn’t sleep and we are so stressed out. This event has caused so many emotions. We should be happy, yet we are cautious to celebrate. I really want to be happy. I want to cheer, and shout, and jump for joy with all of you. I know you will be happy for us and I love you for that. We need YOU to hold us up, because our happiness will be delayed, so to speak. I want to cry. I want to scream, and yell and hit something. After all of this stress and hearing the wonderful news, all I can do is sit and breathe and wonder about next time. This tumor is evil and it likes to surprise you. It waits until you are comfortable, and living life and then shows up at the party. I am sad for Katie and I am sad for all of the kids that already have and will get different results at some point. Happiness is something we will need to find again. And maybe that is what keeps us fighting, the knowledge that this fight never ends, unless we keep on fighting. It’s never, “You lose, see ya DIPG…” It will always be, “Until next time opponent, until next time.” Thank you to everyone. From the bottom of our hearts. I lean on you more then you will ever know. Thank you to the Wilfords for your Keto expertise, and more time with Katie. Thank you to Tracy for your CBD/THC expertise, and more time with Katie. Thank you to CHOC for recommending and administering Radiation and Avastin so rapidly, and for giving us more time with Katie. Thank you to the Wetzels for connecting us to the Dr’s who have helped us look into additional options for Katie’s big fight coming up, which will also give us more time with Katie. Thank you to the untold amount of people out there that are rooting and fighting for Katie daily, and giving love, support and raising money for her medicine and personal expenses. We can’t thank you enough, you keep us in the present with Katie, and remind us to enjoy her now, as much as possible. You have all given us more time. Time, we are so eternally grateful for. We love you. ‪#‎PleaseShareKatherinesStory‬‪#‎KatherineTheBrave‬ ‪#‎4PercentIsNotEnough‬ ‪#‎DIPGMonster‬