Update – Katherine’s OK

***Warning – Long Post***
Important stuff first. Katherine is ok, we have just been inundated with items due to her increasing symptoms, so we’ve been rushing some things through in the past few days. We apologize for the lack of posts, but I have just not had ONE second to do so. We are watching our childs life disapear before our eyes, and it’s wearing on us emotionally. So much so, that we are mentally exhausted every single moment and what little we have is focused on our kids. We meet/talk/confer with Hospice daily. Our main goal right now is making Katie comfortable, happy, and keeping her peaceful. She shouldn’t be stressed at all, and I’ve expressed that to them. If it was me, I’d want happiness, and that’s what she will have. Hospice is amazing, and they are on the same page and totally on board with our wishes to be one step ahead of her suffering. I promise we will try to get on here more as the days continue to move along. Thank you all so much for the well wishes, and for everything you have said to us and to Katherine to encourage her to fight. Here is a list of her latest symptoms (these symptoms come and go, some are permanently gone, some are increasing):
1: Walk on her own freely

2: Eat on her own holding a spoon

3: Grasp or hold items for extended periods

4: Go to the bathroom on her own

5: Speak and express herself frequently

6: Eat Sherbet

7: Build Legos

8: Get in and out of bed

9: Swallow her own saliva

10: Control hiccups

11: Play with her favorite cousins and friends

12: Left eye is swollen and hurts/rolls around

13: Bring up phlegm

14: Drooling

15: Fears of being alone

16: No longer able to color

17: Anxiety
I share these symptoms with everyone to bring awareness to this horrible disease, and to all of the human blessings that it slowly takes from our children, our child, so rapidly. It’s an attempt to take you into our world, and as graphic as it is, our honesty is necessary to push for funding and support. The more people aware, the more funding we will receive for this “rare” cancer.
And even through this all, with all of these symptoms, she smiles. She smiles a lot… She insists on others joining her, and she wants to live.

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