Daily Archives: May 30, 2016

“I’m feeling much better.”

Katherine hates the process of getting her throat suctioned out. She cries and her eyes water. She cringes and begs us to stop. She tells us she is fine, even when she’s not, so that we will just stop doing it. I talk to her through the entire process. I tell her I’m sorry. I wish I didn’t have to. She’s so much braver than daddy and I, and we would not be so brave. I remind her that it’s going to make her feel so much better. And then I rub and hug and kiss her. I’m tired of doing this. I’m sure she thinks I’m evil incarnate during the process. She forgives me each time. And every single time we’re done she is so worried about us doing it again, that she says this to reaffirm that we do not need to do it again. She is so adorable and precious and doesn’t deserve this treatment or disease.
Katie is getting up really early tomorrow to see the sunrise. And we are heading out again early evening to see the sunset. She sat on her couch all morning, starting at 4 AM, just waiting to see the sunrise out the window, before I realized what she was doing. We talked about it, but not until I went to shut the window shade did she say, “No, I want to see the sunrise!” So, it was too late. Tomorrows the day. I hope it’s beautiful. 
We’re selling shirts, bands, and stickers to pay for her meds. I’ll post some more sizes tomorrow, after I do a recount. Donations for the shirts, bands, and stickers can be made to jaimerieck@yahoo.com via PayPal or the GoFundMe at https://www.gofundme.com/katherinethebrave. Any donation for the items will do.
Thank you…
#DIPG #KatherineTheBrave​