Daily Archives: September 2, 2016

September 2nd

September 2nd, day two of Pediatric Cancer Awareness month, #GoGold, and oh the thoughts going through my head. My precious 7 year old child is gone. On June 6th of this year she died in my arms, after I asked her to let go, as I changed my mind and begged for her to stay with me, and then begged her to be pain free and go again…
So I’m left here to ask: Why didn’t I know about pediatric cancers and their lack of funding before my Katherine was diagnosed with cancer? Why didn’t we know that some cancers, as Katherine’s, have no survival rate, and that children are just expected to go home and die? Why didn’t we know that cancer kills more than 2,500 children in our country every year. We weren’t aware that over 13,500 kids will be diagnosed with cancer over the next 365 days, right along with us? Who knew that no government funding means that these children sit and wait to take poisons that don’t work, and receive treatments which are more than 35 years old, and with little survival success rates. These children WILL die. I could have never guessed that the NCI controls BILLIONS of dollars in funding but will NOT give it to us!!! I was oblivious. 
Well now I know. And so do you. Are we mad yet???
This was my daughter. Several days after she passed away in my arms. Surrounded by friends and family. She is laying on a cold metal table, in a mortuary. She has her favorite princess blanket draped over her body. This is pediatric cancer. This is #DIPG. This isn’t an adult. She didn’t live a full life. She didn’t even live a partial life. She lived 7 years. She was given no chance. She deserved more. We were told she WOULD die. And that she did. She died. She gasped for her last breathe, in no different fashion than an elderly patient passing of natural causes and old age. At 7 years old. And we died too. 
Please share our daughters story. Please share so that others are aware. So that at some point in our lives other kids hopefully do not have to suffer the same fate. So that the NCI and the ACS have to pay attention. So that our government realizes that their focus, and their priorities, are mute compared to the children dying every day right in front of our eyes, in this country. Dying, in our arms. In my arms…
I’m so sorry Katherine. I miss you. I’ll fight until I die for people to stop this insanity and do something about this. #LovesAndkisses